Defense Date


Document Type


Degree Name

Master of Science



First Advisor

Tegywn Brickhouse


Purpose: The specific aim of this study is to evaluate the trends in dental health care for individuals with ectodermal dysplasia. Methods: This was a cross sectional analysis of subjects recruited through the National Foundation of Ectodermal Dysplasia (NFED). From 1997 to 2000, individuals with ectodermal dysplasia or their caregiver (if the individuals were too young to selfreport) voluntarily completed questionnaires. The questionnaire consisted of 37 items consisting of demographics, ectodermal dysplasia diagnosis, access to dental care, level of dental utilization, and type of dental services received. Descriptive statistics were used in addition to ANOVA analyses to evaluate the changing trends in oral health care for individuals with ectodermal dysplasia. Results: Preliminary results indicate: 1) individuals with ectodermal dysplasia are being diagnosed earlier than in the past, 2) physicians are primary source of the initial diagnosis of ectodermal dysplasia, 3) children with ectodermal dysplasia are receiving prostheses earlier than in the past, and 4) access to care is problematic. Conclusion: Diagnosis and recognition of treatment needs are occurring at an earlier age and that an access to dental care for individuals with ectodermal dysplasia continues to be an issue.


© The Author

Is Part Of

VCU University Archives

Is Part Of

VCU Theses and Dissertations

Date of Submission

May 2011

Included in

Dentistry Commons